Saturday, May 13, 2017

The unvarnished truth.

This is a post I really hoped I didn't have to write. You wanted to hear my take on Cerebral Palsy, and not censor my thoughts. I realize I may lose followers, but I must. I was born with a mild case of Cerebral Palsy. Mild in that if I didn't tell you, you wouldn't know. Cerebral Palsy is an "brain disorder which affects movement and fine motor skills"as defined by reputable sources.  Doesn't seem bad, you'd think. Well to keep up the charade of looking normal is expensive as heck. Eight to ten surgeries, plus two more for a baclofen pump, not forgetting years of Botox injections in my legs, and nerve blocks in my shoulder blades, should I continue?  The years of physical and occupational therapy to learn to do so called things like brush your teeth.   Years of work in a therapist's chair to repair the damage of others' words and my OWN.   What you don't see are the bruises from falling, the countless hits to my pride as I ask for help to tighten my bra straps, among many other examples. Fighting for my right to an education, because, since you look normal, you should be able to meet our requirements without accommodation. I won't elaborate on how painful that experience was, because thinking on it, it still is. Why you ask, am I doing this?  A nice little health care bill passed the House that says, you don't matter. I have infantile Cerebral Palsy, one of those pre existing conditions.  My representative voted for it. Now, here it is folks, if you don't want the truth STOP READING.

This was a bill voted for by conservative Christians who ascribe to being pro life. The unborn is sacred, but if you're born with a medical issue, screw you. For God, who knit me in my mother's womb, and I'm fearfully and wonderfully made, Republicans said scratch that. When it says to give up all you earthly wealth, and follow me. Republicans say, nope, I don't subscribe. When God implores us to love the least of these, no, I don't need to apply that.   This tells me I better pray all unborn children are born with disease or defect. I am glad I found Christ before now, because even now as a Christian, I wonder if we read the same Bible. I have little regard for policing of either political stripe as I tired of being told, "I can't do any good if I'm not in office."  I'm tired of being told you're net worth is tied with your self worth.

I'm so tired of folks who use God to justify their actions. Maybe I  should've at least prayed to asked to  have born with a silver spoon if I had to born with this disorder according to this bill. I pray the Senate has better judgement.

Mahatma Gandhi once said, I like your Christ, I don't like your Christians. I'm paraphrasing.   Would those who love Christ, please show it.


  1. Kiitos vierailusta tulin vuorostaan katsomaan blogiasi en osaa kieltä, mutta tunteenteella mukana.

  2. Great post :)

  3. This was good to read. I do hope the senate can sort this out. Wishing you all the best. Thanks for writing this.

  4. the truth is the truth and it is important for all of us to understand the impact these bills will have on everyone! you are so important, we all are and together we have to figure this all out....

    as to the CP, i am saddened to read about how much you have suffered. chronic illnesses really suck and so many people have no idea. i do!!! best wishes to you, from my heart!!

  5. This is a very beautiful post. I hope and pray that the Senate does the right thing.

    A Mermaid's Crafts

  6. You're not going to lose any followers, Regine. This is such an heartfelt, honest post. It was very educational for me. I'm just so sorry you have had to endure such pain in your life.
    And as far as Washington, DC goes, " their fruits ye shall know them." I also wonder if some of them read the same Bible...

  7. Thanks for your visit to my blog and your nice comment. This is a great post and VERY important!

  8. I admire your courage to speak up and feel moved reading about your situation. As a community, it is important for us to support each other and put pressure on the decision makers when their views are unjust or distorted.
    Thank you for stopping by my blog and leaving a lovely comment.

  9. I doubt you will lose any followers or readers Regine, this is such a heartfelt and honest post, which I'm so pleased you took the time to write and share.

    I send my good wishes

    All the best Jan

  10. Regine, I admire your courage to tell us about your painful situation and your feelings. Great post!
    Thank you for stopping by blog.
    I wish you the best.

  11. Thank you very much for the visit to my blog. Great post
    Hugs Alessandra

  12. Dearest Regine,
    Well, I do understand your feeling as I too suffer from a very rare auto immune disease that had me paralyzed in January of 2010. Having to pay the value of two new cars on out of pocket medical costs, hurts and also the fact that insurance companies raise the premium so steeply when you suffer something like that!
    No, this President will not take away our coverage; that is a LIE.
    But I sure am happy that I made it till Medicare, it is not as much a burden as it used to be.
    Be strong and know that you are NEVER alone in this fight!

    PS I've been on crutches again since Thursday. Got severe lower leg cramps at night and had to jump out of bed. Spraining my ankle and it got so swollen and painful. Always that Sword of Damocles hanging above you... the fear of oh no; not again!

  13. Lovely post! Wishing you all the best :)

  14. I am glad you have the courage to share what you have been going through. your struggles, pain and feelings. I am sure you won't be losing your followers. Its a good reminder for us to be caring and compassionate Christians.

  15. Wow, Rue. This is fabulous. Strong, courageous, honest, powerful and it rings so very true to me. I popped back over to your blog because not only did you visit my family blog (which I never really promote because most people don't care and I get that; it's there for anyone but it's usually family that reads) and because I was tight on time when I was here last time and I wanted to come back and scroll down further. I am so very glad I did. Bravo to you. I don't know if you lost any followers or not but you got a new one.

  16. Is there something new with leaving a comment? Mine disappeared. Suffice it to say now that this is a great post. I will click publish now and see what happens.

  17. OK, me again, just had to check before I repeated my comment. I have two pre-existing conditions, but fortunately I worked at UCLA and now get a pension and benefits from the University. One of my problems is Type 1 diabetes and I hate to think what will happen to those who are dependent on insurance to cover the cost of insulin. It would be impossible and people would die, needlessly. I have never seen such a bunch of callous people as those in congress, willing to throw millions of people under the bus in order to pass a bill so Trump can get to brag about it. As for evangelical Christians, all I have to say is: "What would Jesus say? What would Jesus do"? Thanks for stopping by, I am now your latest follower. Great post, thank you.

  18. It''''s a courage to speak about some thinks even if some people can't degree with you. I think people should have more respect to each other

  19. Hello my dear,

    very good photos and interessting topic;)
    I will follow your blog :-*

    Hugs from Germany;)

  20. I'm sorry you've had to suffer. XO

  21. Regine, you are amazing. I am moved by your strength and courage. You've been through a lot. May this piece inspire all of us to be more caring and compassionate towards those who suffer in silence. x